Well first off HAPPY 2014! Hard to believe this whole year has been filled with a mind full of adoption prep and we start the new year with our kiddos ALL HOME!
Josh and I feel so very blessed to have them both here! Isac is our happy, lovable charming little boy. He definitely has his moments. He is still learning what no means and how not everything will go his way in this family. After all of his doctors appointments though he is free and clear of any special needs! We are still waiting to hear though about his high lead counts, I'm assuming since they haven't moved too quick on it it's nothing dire but I'll be happy when I don't have to think about it any more.He and Levi are finding more common ground together, usually if it has something to do with throwing or running around screaming (oiy-vey), but I'm just happy to not see them pushing each other.
Nina seems to be bonding to both of us much more and I see a little but more of who she is every day. Just today she crawled in my lap and literally moved my arms around her body to cradle her. Such a sweet moment as this is a very good sign for kids who are adopted because it means they want to start back from the beginning with you as their mommy. They want to fill in where their lives left off before they were an orphan. And they want you to fill in those spaces. Most all moments with Nina are short as she doesn't sit still long at all! She is very lively and LOOOOVES music! Both her and Isac will jump up at every sound of music and dance around. ARE THEY NOT NOLL'S OR WHAT!!!!!! We still struggle with Nina going to new places, it really makes her nervous but she did better this week in church than the last week and better than two weeks before that, so she's making progress! :)
We also got an official diagnosis for her. It was what her neurologist suspected, Tubular Sclerosis Complex. you can read about it here: http://www.tsalliance.org/. Her body has benign tumors on major organs of her body, There are on her brain which is what causes the seizures. (Please pray for this as we are working hard at getting her meds at a good dose to control the seizures. We are getting very close to being at the max we can give her with what she is on now. I really want to stay far away from brain surgery as much as possible, to control her seizures.) Other places we are having checked out this week are her kidneys and heart. Next month she will have her eyes checked for them as well. There is no cure for it, you usually just treat the symptoms unless they are causing major life threatening issues. Other things it also affects are behavior issues, sometimes kids can be on the Spectrum or have OCD and or act younger (we see this with Nina in some areas). We were pretty shocked as this is more than we had thought. As a mom, it was a tough pill to swallow. What was the hardest for me to grasp was that this special need has sooo many different areas that could and probably would have been missed had our GREAT Creator not seen her and taken her in. Though this was more than we thought, every part of my heart is ready and willing to see her through each and every thing we face together! She is our daughter. I don't know this because she is a sweet happy well adjusted kid, because sometimes, well honestly she is not, i don't know this because she always has nothing but love for us, because sometimes SHE REALLY doesn't yet. I don't say this because, well I'll be completely honest, I have already fallen completely in love with her as if I have always known her, because honestly, just like she is not there yet with us as strangers, I am not their with her yet either. I say this because through every step of our adoption process, I have seen our amazing God move and write ours and Nina and Isac's life stories together. They are our kids because He made it so, and in that I find rest. The rest will come. Though their are days (especially in China) that I wondered, "WHEN GOD?", but they will. And God has blessed me with friends and allll around me who keep reminding me that.
In fact in church we sang this song called Your Great Name by Natalie Grant, sitting there holding Nina and singing the words:
Hungry souls; receive grace; at the sound of your great name
The fatherless; they find their rest; at the sound of your great name
Sick are healed; and the dead are raised; at the sound of your great name"
|loooooves swings! This was at Nana's, the kids got a play set for Christmas!!|
|my girls my girls my girls talking bout MY GIRLS!!|
|our sweet new blessings|
|our sweet boys-laid back and crazy! boy I'm in trouble!|
|Listening to Baba tell the Christmas Story|
|Christmas morning-all the boys got toy guns!|
|Likes to climb too...yay|
|My family parade!|
|One eats very messy, one VERY neat...for now|
|on our way to doctor's appointments|
|Isac's first birthday party to celebrate his little cousin!|
|My little dancer!|
|you like my pigtails? (all pictures of this sweet girl are done against her will! She doesn't scream or anything, just runs as soon as she realizes what your doing! LOL)|
|But not this little guy! He LOVES them!|
|yes I love pudding!|
|Isac is learning when you have big sister's you need to either join them, or run faster!|
|first Sunday at church|